I know that my sisters will agree with me that there is nothing we know of that beats the distress of having your legs convulse when you are resting or trying to sleep. There’s an anxiety you feel when it starts and you hope it will be distracted by moving about, which you must do as there is no way you can stand or sit still. This affects your quality of life. Imagine sitting in a movie and you shift yourself about trying to not disturb when finally you give up and leave your seat missing the movie yourself and who ever you are with. Or you are on a rode trip and you haven’t taken your meds, medication that supposedly helps but in the long run may only make it worse. I write this while swinging my right leg in the air and trying to balance my computer on my stomach cuz I want to write this now. Usually when I get it I feel it in just one leg (at at time)We take a medication to prevent this daily, some times it doesn’t work and we are left moving and shaking our legs, we know when either of us have it by the way we move our legs back and forth and shaking and we say ‘did you take your pill? Sometimes we have and still get the shakes and wiggles. You can imagine how it is for me with such limited space to move around in at least my sister has a house to roam
It’s a crawl-ly feeling in you get in your legs, a restless sensation that doesn’t allow you to ignore .Opiates help but who wants to take that step, while being an appropriate drug even if you agreed who would prescribe it in this ‘war on drugs’. If I feel desperate I’ll use my IC pain med for it but what if I need it for IC, which is worse pain of IC or RLS? Why do I have to chose between and what if I run out and can’t get a refill? Pain management has gone through many changes of late now of which are good for those needing pain management.
www.rls.orgRestless legs syndrome (RLS), also called Willis-Ekbom Disease, causes unpleasant or uncomfortable sensations in the legs and an irresistible urge to move them. Symptoms commonly occur in the late afternoon or evening hours, and are often most severe at night when a person is resting, such as sitting or lying in bed.
It could be worse right?